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mano
Local Fixture
2873 Posts |
 Posted - 12/19/2009 : 2:49:00 PM
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Julie, that news made my day!  That should put you right in the Christmas spirit! You did have one of the easier genotypes to treat, otherwise you would have had to do a full year of treatment...and you see why a lot of people don't make the full year...the treatment is brutal, but I guess we do what we have to do sometimes. Yeah, I'm cured too...I just had bloodwork done a few months ago and I'm still undetectable and all is good with liver functions, etc., and it has been about 7 years for me since tx. I think...who can remember, it's all a fog now between that and opiates  Really great news Julie...a BIG congratulations!!
God I woke up in pain this morning...Diverticulitous flarup I think, and I had gas that could have peeled the paint off the walls I ate a bunch of junk yeterday, then topped it off with a bunch of cookies with nuts in them...ouch. I need a serious diet makeover come January 1st! That's another gift from suboxone...fucked up bowels! |
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mimiluv
Local Fixture
Cuba
6396 Posts |
Posted - 12/19/2009 : 2:56:25 PM
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quote:
Originally posted by mano
Julie, that news made my day! That should put you right in the Christmas spirit! You did have one of the easier genotypes to treat, otherwise you would have had to do a full year of treatment...and you see why a lot of people don't make the full year...the treatment is brutal, but I guess we do what we have to do sometimes. Yeah, I'm cured too...I just had bloodwork done a few months ago and I'm still undetectable and all is good with liver functions, etc., and it has been about 7 years for me since tx. I think...who can remember, it's all a fog now between that and opiates Really great news Julie...a BIG congratulations!!
God I woke up in pain this morning...Diverticulitous flarup I think, and I had gas that could have peeled the paint off the walls I ate a bunch of junk yeterday, then topped it off with a bunch of cookies with nuts in them...ouch. I need a serious diet makeover come January 1st! That's another gift from suboxone...fucked up bowels!
 That just made my day Mano |
Angela
8/26/09 sub free
9/6/09 benzo free
9/27/09 CLEAN!!!
Before you can see the light, you must DEAL with the darkness. |
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mano
Local Fixture
2873 Posts |
Posted - 12/19/2009 : 3:11:13 PM
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Oh it was special...it even woke the dog  I'm just glad I wasn't sleeping by the fireplace |
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mimiluv
Local Fixture
Cuba
6396 Posts |
Posted - 12/19/2009 : 3:25:16 PM
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LOL, Mano.
You know my son takes the biggest shits. I am not kidding, they plug up the toilet every time. I call them his babies or toilet monsters., I dont' even know how they come out of his butt . And stink, OMG, it's so bad, I literally dry heave every time I have to kill one. |
Angela
8/26/09 sub free
9/6/09 benzo free
9/27/09 CLEAN!!!
Before you can see the light, you must DEAL with the darkness. |
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mimiluv
Local Fixture
Cuba
6396 Posts |
Posted - 12/20/2009 : 10:32:32 AM
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Well this place is a blast Aren't all you Noreasters snowed in and bored out of your minds yet?? It's snowing here in Mn. I have the kids Christmas Concert today.
My sleep has gone to hell in a hand basket, my anxiety is back I can't get into the Holiday mood
Okay, whatever, hope you all have a good day |
Angela
8/26/09 sub free
9/6/09 benzo free
9/27/09 CLEAN!!!
Before you can see the light, you must DEAL with the darkness. |
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mano
Local Fixture
2873 Posts |
Posted - 12/20/2009 : 11:18:23 AM
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We didn't get a drop of new snow here, but I hear DC and the surrounding area got buried. It hasn't risen above 30 degrees in a week though.
Angela, try stomping a few kittens to death. That always gets me in the Christmas spirit, and it is very calming.
Everyone got their shopping done? I am close...a few little gifts to get for some friends kids maybe. |
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mano
Local Fixture
2873 Posts |
Posted - 12/20/2009 : 12:37:20 PM
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Here's a real heart warming Christmas story for you, that happened to me about 8-9 years ago...actually about the time I first started experimenting with opiates. It was during my hep c treatment and I was really depressed and sick.
I had a real estate office in a prime part of the city...the whole block was all doctors offices, dentists, etc. so there was lots of daytime foot traffic in and out of all these places.
I used to walk a mile every afternoon for exercise. One day about this time of year on a frigid cold day, this college aged kid comes up to me and mumbles something...He is obviously frozen to death and he is shivering so bad I can't understand what he is saying. He repeats and asks if I have anything he can do to earn $13, because he came to town the night before with friends and he got stranded there, lost his friends, and was trying to earn enough money to buy a bus ticket back home. I looked at him, thought about it a second, and pulled out a $20. I told him to go get a hot meal and a bus ticket, and wished him a Merry Christmas. The kid started crying, and gave me a big hug, and we parted ways.
I felt so good to have helped this poor kid out. I went on with my walk and it really brought the Christmas spirit on me and made me feel so positive. Touching huh?
The next day was another frigid below freezing day, but once again I bundled up and went for my walk, even though I was deathly sick from chemo.
Who do I run into, but the same kid from yesterday. As I approach, he walks up to me, shivering, and asks me the same exact thing he did the day before. He didn't even recognize me. I was floored knowing I had been conned, and I just shook my head in disbelief and kept on walking. What a perfect scam....there was tons of foot traffic of people coming and going to appointments, and the $13 was a perfect amount. Just think how many people would peel out a $20 at Christmas.
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BOAG
Senior Member
Vatican City
1063 Posts |
Posted - 12/20/2009 : 1:22:00 PM
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| Maybe he lost his bus ticket? |
"If for kindness you'd substitute blindness, please open your eyes."
Martin L. Gore |
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BOAG
Senior Member
Vatican City
1063 Posts |
Posted - 12/20/2009 : 1:23:20 PM
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And I'm so happy for Julie's and Mano's livers!!!!!!!!!!!  |
"If for kindness you'd substitute blindness, please open your eyes."
Martin L. Gore |
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Syd
Member
Nepal
453 Posts |
Posted - 12/20/2009 : 1:57:53 PM
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quote:
Originally posted by julie1129
Oh! And some REALLY good news I have to share!!! I just went for my six-month bloodwork for my liver, and the Hep C virus is STILL undetecable!!! So at this point, six months post-treatment and no sign of the virus, my doctor said I am basically cured!! I was kinda shocked he said that, but that's what he said! He said the strain of Hep C I have is the best (if there is one) and easiest one to treat, and that if it hasn't come back at the six-month point, then it ain't comin' back!!! AND he said that my liver WILL be able to repair most of the damage that's been done so far. I will never have a COMPLETELY healthy liver, but close to it, he said.
So I am VERY happy about this news!!! That f-ing treatment was THE worst thing I've ever gone through in my life, and if I had gone through that hell for nothing, I would have been PISSED beyond belief! But that didn't happen! And the horrendous treatment worked!
So yayyyyy for me!
Mano, how are YOU doing with this???? How's YOUR liver???? You're good, right???
Anybody else here have Hep C???
Okay, I just had to tell you all the good news!
That's awesome news, Julie. I know how brutal that tx is.
I have Hep C. & like you, I will only need 6 mo. of tx.Last check, my viral load was really low...like 400 & my dr. wasn't even sure insurance would pay for tx. After watching my ex take the tx for a year...respect to you Mano & seeing what you, went thru, as well, has spooked me, for sure. |
You could not step twice into the same river; for other waters are ever flowing on to you- Heraclitus |
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julie1129
Local Fixture
3212 Posts |
Posted - 12/20/2009 : 4:23:48 PM
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Oh shit, Syd. I didn't know YOU had Hep C, too!!! Jesus Christ.
Do you know approximately how long you've had it??? Because I had mine for over 20 years before I was even diagnosed, and my viral load was over 6 million. So if you only have a viral load of 400 (I'm assuming you don't mean 400,000....), then I would NOT do the treatment. That's just my personal opinion, though. But knowing what I know now, unless I was on the verge of needing a liver transplant, I would NEVER EVER EVER go through this treatment.
Now again...this is only MY opinion. And I feel kinda bad saying this, because I don't wanna dissuade someone ELSE from getting the treatment if they need it.....BUT I would NOT go through this Hep C treatment unless absolutely necessary. It nearly killed me. And I'm not joking. And even if my Hep C somehow DID come back, I STILL would NEVER go through treatment again. EVER.
Okay, I think I've made myself pretty clear on this! lol But everyone needs to make up their own mind. But for me??? In hindsight, I wish I never did it. I am STILL suffering with the repercussions of the treatment, and some of this stuff is permanent. So it's no joke. But I think some people tolerate the treatment better than others. It just wreaked havoc on me and every organ in my body. I was literally seeing five different doctors while I was going through treatment, that's how badly it fucked me up. The neurological and eye problems were the worst, as well as it fucking up my endocrine system big time, and I am STILL being followed by these doctors and taking meds because of it. Oh, and let's not forget just the daily horrendous side effects that everyone suffers with. My hair is JUST starting to grow back!
Fucking Hep C meds.
Okay, I better stop. I'm sure I've already scared any fellow Hep C-ers from ever starting treatment.
Sorry about that, but I'm just being honest about what I went through.
When were you diagnosed, Syd??? And are think leaning TOWARDS treatment or no???
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julie1129
Local Fixture
3212 Posts |
Posted - 12/20/2009 : 4:32:44 PM
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quote:
Originally posted by mano
Here's a real heart warming Christmas story for you, that happened to me about 8-9 years ago...actually about the time I first started experimenting with opiates. It was during my hep c treatment and I was really depressed and sick.
I had a real estate office in a prime part of the city...the whole block was all doctors offices, dentists, etc. so there was lots of daytime foot traffic in and out of all these places.
I used to walk a mile every afternoon for exercise. One day about this time of year on a frigid cold day, this college aged kid comes up to me and mumbles something...He is obviously frozen to death and he is shivering so bad I can't understand what he is saying. He repeats and asks if I have anything he can do to earn $13, because he came to town the night before with friends and he got stranded there, lost his friends, and was trying to earn enough money to buy a bus ticket back home. I looked at him, thought about it a second, and pulled out a $20. I told him to go get a hot meal and a bus ticket, and wished him a Merry Christmas. The kid started crying, and gave me a big hug, and we parted ways.
I felt so good to have helped this poor kid out. I went on with my walk and it really brought the Christmas spirit on me and made me feel so positive. Touching huh?
The next day was another frigid below freezing day, but once again I bundled up and went for my walk, even though I was deathly sick from chemo.
Who do I run into, but the same kid from yesterday. As I approach, he walks up to me, shivering, and asks me the same exact thing he did the day before. He didn't even recognize me. I was floored knowing I had been conned, and I just shook my head in disbelief and kept on walking. What a perfect scam....there was tons of foot traffic of people coming and going to appointments, and the $13 was a perfect amount. Just think how many people would peel out a $20 at Christmas.
lol. Sleazy fucking junkies.
We ARE good at the con, ain't we! 
Mano, don't feel bad. I'm a sucker for the bums and homeless people, especially around this time of year. God help me when I get stuck at a red light in Boston, cuz that's where all the homeless people hang out, and once I see their pathetic, sad-looking faces...just staring at me with their scribbled sign, I can't help myself. There's nowhere for me to go....and I'm just stuck there at the red light....looking at them. So I have to give them some money. I wish I could just ignore them like everyone else...but I can't.
Why do there have to be less-fortunate people in the world, damn it!!!
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julie1129
Local Fixture
3212 Posts |
Posted - 12/20/2009 : 4:35:42 PM
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quote:
Originally posted by BOAG
And I'm so happy for Julie's and Mano's livers!!!!!!!!!!!
Thank you, BOAG!!!! You are a nice person.
I'm happy for YOUR liver, too!
Hell, I'm happy for ALL of our livers!!!
Three cheers for our livers, everyone!!!
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Gillabug
Moderator
USA
3001 Posts |
Posted - 12/20/2009 : 4:47:43 PM
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omg, so the tears were fake too huh? Little dipshit! lol
Hooray on your liver results Julie! I know it was hell on you.. so you soo deserve a good outcome! |
"Never make someone a priority, when all you are to them is an option." |
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mano
Local Fixture
2873 Posts |
Posted - 12/20/2009 : 4:58:24 PM
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quote:
omg, so the tears were fake too huh? Little dipshit! lol
They must have been tears of joy, knowing he was about to get high |
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Gillabug
Moderator
USA
3001 Posts |
Posted - 12/20/2009 : 5:02:07 PM
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| Not getting off track here.. But I just had something happen to me that hasn't happened to me in years! I had the worst panic attack in the dollar store. I was fine when I left home. I was alone, which I prefer when I'm shopping. But all of a sudden my heart started beating 90 miles an hour and I just wanted to get the hell out of there. I didnt need but a few items, and my plan was to go over to WinnDixie when I left there. The dollar store wasn't crowded at all. I shopped a lot yesterday and I was fine. So wth happened today? I hurriedly paid for my stuff and all but ran to my car. Once I got in I lit up a cig. and flew home. It's been years since something like this happened. |
"Never make someone a priority, when all you are to them is an option." |
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Syd
Member
Nepal
453 Posts |
Posted - 12/20/2009 : 5:13:00 PM
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quote:
Originally posted by julie1129
Oh shit, Syd. I didn't know YOU had Hep C, too!!! Jesus Christ.
Do you know approximately how long you've had it??? Because I had mine for over 20 years before I was even diagnosed, and my viral load was over 6 million. So if you only have a viral load of 400 (I'm assuming you don't mean 400,000....), then I would NOT do the treatment. That's just my personal opinion, though. But knowing what I know now, unless I was on the verge of needing a liver transplant, I would NEVER EVER EVER go through this treatment.
Now again...this is only MY opinion. And I feel kinda bad saying this, because I don't wanna dissuade someone ELSE from getting the treatment if they need it.....BUT I would NOT go through this Hep C treatment unless absolutely necessary. It nearly killed me. And I'm not joking. And even if my Hep C somehow DID come back, I STILL would NEVER go through treatment again. EVER.
Okay, I think I've made myself pretty clear on this! lol But everyone needs to make up their own mind. But for me??? In hindsight, I wish I never did it. I am STILL suffering with the repercussions of the treatment, and some of this stuff is permanent. So it's no joke. But I think some people tolerate the treatment better than others. It just wreaked havoc on me and every organ in my body. I was literally seeing five different doctors while I was going through treatment, that's how badly it fucked me up. The neurological and eye problems were the worst, as well as it fucking up my endocrine system big time, and I am STILL being followed by these doctors and taking meds because of it. Oh, and let's not forget just the daily horrendous side effects that everyone suffers with. My hair is JUST starting to grow back!
Fucking Hep C meds.
Okay, I better stop. I'm sure I've already scared any fellow Hep C-ers from ever starting treatment.
Sorry about that, but I'm just being honest about what I went through.
When were you diagnosed, Syd??? And are think leaning TOWARDS treatment or no???
Whew! Just got back in, from cleaning snow off the car. Took over an hour. Getting the snow out of the luggage rack is a bitch. The whole time, I was thinking about you, BOAG. I cursed your beautiful tree, I cursed your view of the ocean & I cursed your for wishing for snow
Julie. I was dx, over 10 yrs ago. You're right. My viral load is 400,000 Not billion. Watching Ed go thru a year of it & seeing how bad if messed you up, def plays on my decision.
The only thing is, I have let it keep me from having a intimate relationship for a Very long time. Even though the chances are slim, I just can't imagine taking a chance on infecting someone else. So this disease, has turned me into an social recluse, who spends way too much time with my friends on the web. Not healthy & I know it.
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You could not step twice into the same river; for other waters are ever flowing on to you- Heraclitus |
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Gillabug
Moderator
USA
3001 Posts |
Posted - 12/20/2009 : 5:30:01 PM
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quote:
Originally posted by BOAG
Maybe he lost his bus ticket?
I just saw that! lol |
"Never make someone a priority, when all you are to them is an option." |
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CTCheryl
Senior Member
USA
1121 Posts |
Posted - 12/21/2009 : 08:44:11 AM
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Wow, JULIE! My friend, I can't express how happy I am over your blood work news! I know what you've been through these last several years and just have to say what a survivor you are! You could have thrown in the towel so many times and you didn't. (I don't mean relapse either) Same goes for you Mano, you really helped Julie so much when she was facing this whole Hep C diagnosis. It just goes to show, we don't have to meet face to face but having this addiction in common binds us in a weird and wonderful way...
We actually went to a Christmas Party on Saturday one of hubby's friends that did get a liver transplant 2 years ago and truly came closer to death than anyone I've ever seen and didn't die. He is still going strong and now every year throws this big bash and everyone donates what they can to the ALF. He is an amazing cook too.
Got my nails done this weekend so I am ready for my outfit, send it on over!!
Cheryl |
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mimiluv
Local Fixture
Cuba
6396 Posts |
Posted - 12/21/2009 : 11:41:21 AM
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Mano, I am very happy about your liver too.
So what do all of you do on Christmas and C eve? We go to my In-laws for Christmas eve and open presents there w/ my Husband Brothers and Sister ect... I will most likely get into a argument w/ my Mother in-law this year, lol. We are having a few issues, regarding soda and my kids this year and I am taking her power away and she will not be happy about that.. Then we have Christmas morning at my house w/ my husband and kids. Then my sister and her Bf come over and then in the afternoon we go back over to my In-laws and celebrate w/ my Monster in-law's family.
So aaaaaaaaanyway, what does everyone else do? |
Angela
8/26/09 sub free
9/6/09 benzo free
9/27/09 CLEAN!!!
Before you can see the light, you must DEAL with the darkness. |
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BOAG
Senior Member
Vatican City
1063 Posts |
Posted - 12/21/2009 : 12:54:52 PM
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| We'll be camping this year for xmas. I think I'm going to give my BF his presents before we leave since he already gave me mine. It will be really nice because it will just be the 2 of us and will be very romantic, without any pesky children or relatives interfering. |
"If for kindness you'd substitute blindness, please open your eyes."
Martin L. Gore |
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cgdg
Member
363 Posts |
Posted - 12/21/2009 : 2:15:12 PM
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quote:
Originally posted by mimiluv
You know my son takes the biggest shits. I am not kidding, they plug up the toilet every time. I call them his babies or toilet monsters., I dont' even know how they come out of his butt. And stink, OMG, it's so bad, I literally dry heave every time I have to kill one.
Hard to believe no one has commented on this post....fortuitous that I chose to read while enjoying a lunchtime sammich, as well.
Two words: more vegetables. |
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CTCheryl
Senior Member
USA
1121 Posts |
Posted - 12/21/2009 : 3:17:19 PM
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Cd,
this is only because we have already heard about Angela's son's shitting exploits already in the past. Hard to believe this kid is still shitting up a storm, but it's true.... shitting shitting everyday!
BOAG-Camping?? Romantic to me is room service and clean sheets and bon bons (maybe a little bondage) JKJKJK.
We do the once a year Christmas Eve Mass, meatless dinner, the Ukie way and play board games and then Christmas Day huge dinner and a movie. We have a very small family so we make our own traditions.
I am SO NOT in to working today. I am out of here in minutes... |
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julie1129
Local Fixture
3212 Posts |
Posted - 12/21/2009 : 3:49:55 PM
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quote:
Originally posted by CTCheryl
Cd,
BOAG-Camping?? Romantic to me is room service and clean sheets and bon bons (maybe a little bondage) JKJKJK.
Ha ha ha. I know, I thought the same thing, Cheryl! The last time I camped was Girl Scout camp....and I didn't even like THAT! Camping just isn't a "fun time" for me.
But you and BF have a great time, BOAG!!! What did he get you, by the way???? And what did you get him???
quote:
We do the once a year Christmas Eve Mass, meatless dinner, the Ukie way and play board games and then Christmas Day huge dinner and a movie. We have a very small family so we make our own traditions.
Hey, what movie are you going to see??? My daughter and I just started the tradition last year of going to the movies on Christmas Day, because we USED to all go to my mom's house, but then we moved that to the day AFTER Christmas because it was just too hard with so many little kids in my family to make it somewhere on Christmas Day, so we had to find a NEW tradition as of last year, so we decided to make her favorite meal and then go to the movies. Last year we saw Benjamin Buttons. I thought it sucked. But what's out this year, Cheryl, anything good????
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BOAG
Senior Member
Vatican City
1063 Posts |
Posted - 12/21/2009 : 4:47:04 PM
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Ok, about the camping thing... we're in a 32' 5th wheel (like a trailer) with a cushion top queen size bed, heating, fridge, microwave... all the modern conveniences. And the camp site is in Big Sur on a cliff overlooking the ocean. You can see whales and otters and other sea creatures frolicking in the waves. And it's not like we sit at camp all day. We like to do day trips to nearby areas, go wine tasting, whale watching, Hearst Castle, lots of stuff to do. AND, the BF does all the cooking, so that's a definite plus.
The BF got me a bronze sculpture of a momma otter and a a baby otter floating on a kelp bed. I love otters and I had seen it over the summer and really wanted it. I had no idea he got it and was really surprised. BUT, we had agreed we weren't going to do any big gifts this year. LIAR! All I had gotten him was a crappy CD. So now I've also gotten him a couple sweaters, more CD's, a fancy pen, and flip flops, lol.
And Jules, I saw Avatar 3D over the weekend and I thought it was really awesome!!!
Cheryl... making your own traditions with a small family sounds like the very best kind.
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"If for kindness you'd substitute blindness, please open your eyes."
Martin L. Gore |
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The Daily Grind Thread
